It’s never far away…

14 07 2012

Alexander David Archer-Page (26 weeks)

So, here we are, blessed again. This is the first time I’ve had the inclination to sit and write about our good fortune, for that is what it is. Alexander is now 30.3 weeks. He’s in the 95th percentile in terms of weight, placing him in the ‘large’ category and Mandy is feeling it, poor girl. It was exactly at this point, 22 months ago that Darcey came into our lives and is going well but is still small – 8.0kgs. However, she’s lively, bright and quite advanced developmentally, ahead of  her non-adjusted age group, when in fact she should be a couple of months behind, so that’s all good.

This week then had a psychological significance and every day that Mandy and Alex can hold on means that he will be safer, stronger and more resilient, whatever happens, but Mandy’s suffering increases.  We survived this week, but we’re taking each days as it comes, not as a given. Alex could arrive at almost any time over the next 10 weeks, if Mandy were to suddenly become ill, as she did with Darcey. Fingers crossed.

So, tonight, it was with sadness that I learnt that one of our friends has been unlucky – her IVF failed. It’s good that she’s talking about it, and actually we’re very pleased she’s talked to us. I remember that people who were expecting babies were the last on the list of people Jo and I wanted to talk to because they’d simply never understand – and in most cases, that would be true. In our case, it simply opens up the old wounds and makes me reflective of how far we’ve come, how lucky I, personally  have been, but what a painful journey I have ridden. It makes me think of Jo, her mum and dad, and how sad they’ve been not having children and grandchildren in their lives because of some unknown physiological condition. I cannot change that, but I can be very grateful for having been given a gift from God, not once, but twice.

But then there’s another friend of ours, whose IVF journey has been so tortuous for her and her husband. She’s gone off air of late, finding it all too hard. Of course, I totally get that. It’s so utterly devastating. It worries me that they, as a couple are not in the same place about this. It harks back to the advice I would always give which is be careful what you wish for and do not let it become all-consuming. At the very least, you, the couple, need to be strong, united and in one place. Ultimately, if one of you is only luke warm about continuing IVF or trying another procedure or process, you stand to place your whole marriage at risk. The marriage and love for each other came first, that, above all else needs to be protected. I pray for our friends, that they will find reconciliation and inner strength to overcome their differences and unite once more.

So here’s the thing. Soon to be a dad of two children, happily married to boot, but feeling terribly unworthy and guilty, because of  all those who have tried to become parents and failed but keep on trying and trying. Those scars I bear are so deep that I guess they will never disappear. From those scars, however, comes empathy, sympathy and understanding – the only support I can offer to those around us who are sad, feeling desolate and angry.

Whatever went before, it’s never far away.





Infertility: the totally misunderstood disease

25 04 2011

Infertility: a disease by any other name

What is it with these people who believe we’ve brought infertility on ourselves? Why do they think the way they do? Why are their attitudes so lacking in humanity and compassion? Why do others think it’s okay for them to have kids, but adoption is the only route for the rest of us? The answer is ignorance, and sadly it’s all too common.

In her recent article, Cristina Odone attacks the IVF industry for undermining adoption in the UK. She argues that if all those who want IVF on the NHS had to first attempt adoption that it would somehow force necessary changes needed to the adoption process in the UK.

To use infertility sufferers as some sort of battering ram to change adoption policy is obscene. What is she thinking? The truth is, she isn’t thinking at all. When we first discover that we, a loving couple, are infertile – because it really is about two people, whatever the circumstances – we’re devastated, we’re in mourning, we’re grief-stricken and our femininity or masculinity has some how been found wanting. We feel anxious, guilty and worried about the future. Everything we hoped for as a couple, those dreams of creating a new generation, the progeny of our love, all those hopes and aspirations, plans and fantasies all tied up together, are suddenly dashed. Most of us would never think that adoption was the next move. We were put on this earth for a reason and it is our right to try everything we possibly can to become the biological parents of children we wish to bring into this world.

Imagine, you troop up to an adoption counsellor and she asks ‘so why do you want to adopt?’ and you say, ‘…well, actually we don’t, we want to have our own kids, but we’ve been told we can’t until we’ve tried adoption first…’ Would she think you were suitable? You wouldn’t exactly be committed would you? Besides, you’ve just found out you’re infertile, so you’re all over the place psychologically anyway. Under this scenario and you tried to adopt, you would be turned down, so the whole exercise would be self defeating and what a waste of energy, time and money it would all have been. The whole suggestion is an absurd one.

Adoption comes to mind last, after every other possibility that can be afforded has been exhausted: IVF, donor egg or surrogacy then adoption, in that order. If you’re like we were, we had fire in our bellies and a desire to fight infertility every step of the way. We were going to try whatever medical science could offer us first, then we would look at other options. Only when you have no more money to throw at it, or as in our case, when the evidence was so heavily stacked against us, with a 1% chance of success it wasn’t worth it, did we move on, but not to adoption but to donor egg, surrogacy and then adoption.

In reality, adoption rules need changing, they are antiquated and in need of reform. It is though the decline in unwanted babies, the rise of freely available abortion that has impacted the adoption market, not IVF. I cannot verify this with numbers, but I think it’s a pretty good hunch that whereas thirty to forty years ago adoption was still frowned on, it is today far more accepted.

There are many who think somehow, because we’ve chosen to have children later in life, we should be denied the support of the state to conceive. The argument is that we’ve brought it upon ourselves, therefore we should be made to pay or to accept the consequences. ‘Tough’ seems to be the view that’s held. However, in a civilised society ‘tough’ won’t cut it. We’ve paid taxes, we’ve made a different choice to those who had children early, that choice isn’t wrong, it’s just different. We have a right to be supported to become parents, in the same way that it’s your right to a university place at any time of your life. There is simply no adequate argument that gives others the right to judge us, nor to condemn us or remove the support needed.

In the light of all this, I have come up with something that I call my ‘Articles of Faith‘, the truths that I hold dear:

  1. I believe infertility is a disability and like many disabilities whilst there’s no absolute cure it can be treated, with a modicum of success – in this instance, one chance in five (depending on age etc). It should be recognised as a disability and those suffering given protection under new legislation just enacted.
  2. I believe that it is everyone’s natural, God given right to become a parent.
  3. I believe that everyone should be entitled to three free IVF treatments by the NHS.
  4. I believe that  it is everyone’s right to choose when they wish to try to become parents.
  5. I believe that all those who have experienced infertility have a duty to speak up and fight ignorance and bigotry surrounding the issue.
It is really important that we try to remain calm and rational when debating these issues because for some of the protagonists out there, this is a bit of saloon bar sport. There’s this notion somehow, held by many,  that we’re all middle class, bleeding heart, lilly-livered liberals who wear open toe sandals, read the Guardian and vote Green, and that we’ve brought this all upon ourselves and therefore, they don’t see why they should have to pay for our largesse. How wrong they are.
So, let’s stand strong, tall and proud and fight these people who know nothing of our pain and anguish. There are none so blind as they who will not see. It is our job, the one’s who are free of the constraints of infertility, who must make them see and educate them. Who will join me in this crusade?




10 requests to family and friends during IVF

1 07 2010

With IVF and in fact any of the associated trials of assisted parenthood, when everyone knows you’re having problems, families and friends can’t help themselves. They love you, they care, some interfere, some say nothing, some are just silly and some simply couldn’t care less.

Whatever and whoever, we all need to set boundaries to make sure that our pain, anxiety, stress as individuals and as a couple is minimised.

I’ve prepared a list of  10 ‘requests’ to communicate to families and friends so that “you can keep your head when all around you are losing theirs.”* Read the rest of this entry »





It was never meant to be

31 05 2010

Having just survived the ordeal of IVF, donor-eggs and surrogacy, our quest to be parents headed off in a different direction, although we did not know it at the time, as a couple, we had been mortally wounded by our IVF. We didn’t go off to Russia or Korea as many did, instead we chose to approach the adoption service in New Zealand. Tired, emotionally battered and mentally exhausted, we somehow convinced ourselves that we were superhuman and that as everything else had failed, perhaps we could lavish our love and affection on children who were less fortunate and needed new parents or parents for the very first time.

Children are very hard to adopt in New Zealand for a number of reasons. Unwanted pregnancies amongst those of New Zealand European ethnic origin are more likely to result in a termination, whereas with Maori and Pacific Island families, many unwanted babies are ‘cared’ for by the extended family. There are also many bureaucratic hurdles through which to jump, quite rightly, which are all designed to protect the interests and welfare of children, and test one’s desire and resolve (as if we needed that to be proven!).

At the time we started looking into adoption, we were told that we would only be able to adopt a baby from our own racial background. Therefore, with a waiting list of over 200 couples for every  NZ European baby that came up for adoption, it was going to be some wait. Unless a private adoption opportunity came along, the reality was we might never become parents, so in earnest we decided to make further enquiries. Read the rest of this entry »





What about me or is that far too selfish?

27 05 2010

This post is my first and possibly the most emotional one that I will ever write. It is about a subject that is very personal and dear to my heart: denied parenthood and infertility. As a political animal, normally opining about one current affairs event or other, it is as if I have taken off my hat and coat to reveal another side to me. Many who read this won’t be affected, but some will resonate with what I have written. I needed to get this off my chest, to feel catharsis, after so many years of bottling it up inside.

I haven’t described every excruciating, painful detail, indeed much is missing, but I hope my narrow perspective might serve to provide some insight into the dilemmas and extraordinary pressures that childless couples endure. Indeed, if this article provides any insights to help people make a choice or to be more informed, it will have served a proper purpose, rather than a purely selfish design that I set out with to unburden myself of this torment. Read the rest of this entry »